During the pandemic, a team led by Charlotte Summers conducted a survey of 4,000+ people to understand security and privacy concerns about the use of health data.
While we regularly engage in co-development activities at DDM Health, this survey focused specifically on the perceptions of anonymised and identifiable data use in the context of COVID-19.
Results indicate that data sensitivity is highly contextual and the nascency of legal guidance in this area suggests a need for urgent guidelines for data responsibility during disaster relief operations such as pandemics and for involving the public in their development.
Read the full study, published in Formative JMIR here: https://formative.jmir.org/2022/7/e29337.
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